GCA

SAW MY PCP YESTERDAY. WE TALKED ABOUT AND SHE TOLD ME THAT THIS WAS A VERY SERIOUS CONDITION. SHE SAID THAT DOCTOR'S WHO MISDIAGNOSED PATIENTS AND DID NOT GET THE RIGHT DIAGNOSIS THE PATIENT EITHER WENT BLIND OR THE PATIENT DIED.
SHE SAID IT WAS A DIBLATNG CONDITION WHICH IT HAS TAKEN A TOLL ON ME. I HAVE TO HAVE A CANE TO WALK WITH BECAUSE MY LEGS JUST GIVE OUT ON ME. I FEEL LIKE I AM BIG AS A HOUSE. THANK GOODNESS MY RHEUMATOLOGIST LOWERED MY STEROIDS TO 25mg NOW. IT HAS BEEN HARD AT TIMES BUT I HAVE IT AND I HAVE TO LEARN TO WORK WITH IT.  SO JUST KEEP ME IN YOUR PRAYERS.
I AM STARTING PHYSICAL THERAPY NEXT WEEK. SO HOPEFULLY SHE SAID THAT I CAN GET SOME OF MY MOVEMENT BACK.
MIKE IS DOING GOOD. WORKING REAL HARD AND HELPING TO TAKE CARE OF ME. HE HAS BEEN SO GOOD TO ME.
HOPE EVERYONE ELSE IS DOING GOOD.
PRAY FOR AUNT VICKI WHO HAD 2 BACK SURGERIES
LOVE TO YOU ALL
JACKIE

Update GCA

Had a visit with my PCP on my GCA yesterday. Still on 60mg. of steroids and puffed up like a blowfish. I feel like a big blob. They also have me on another med. called methantze which is a chemotherapy drug that John Hopkins had used in research.
This is going to be a long process and I do not know when it will go into remission but I know that It is something that I have to live with. It gets me down on some days but most of the days I just go with it.
Mike, My Mom and Bill have been so great. Mike has been wonderful. He has taken real good care of me.
Baseball season starts up in April. Yeah baseball.
Also one of my very favourites is NASCAR and the Daytona 500 is this Sunday. Yeah
Well will go now. I want to try and blog everyday but guess what my intentions are good.

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Location:San Diego

And here he is Baby Blaine Due In July; We Love You Baby Blaine

Ellie and Grandpa Mike. He is showing her how to burp her baby

My preggo babygirl (Due in July)

Ellie is feeding is Trying to feed Brandy

My 3 Wrights (Four Wrights) Mom and Grandma Loves You

Happy Birthday Tassia; We Love You

My 3 babygirls Kota, Tassia and Kayden. The babies are both looking at their Mommy, I think that is so sweet!!

The Balloons heading upward

We Love You and Miss You Jason

Ballon Release in Memory of Jason at Funeral

Mike, Rachel, Ky, Chayne and Brandy

Ky and Kyra with their dolls

Bill and Kyra the bow girl

Mom Christmas Morning

Christmas decorations at my house

Happy 2nd Birthday my little Ellie

Kota and Kayden and the great pumpkin cake caper; Happy Birthday to my babygirls

Mommy with the cakes for her babygirls

I love my girls October 31, 2009

Kylie's 1st day at Preschool November 9, 2009

Kyra ready for her 1st day in 2nd grade September 8, 2009

It has been a while since I have posted on my blog. I promised myself I was going to do better at posting, guess what didn't, I just forget to do it. That is just like my coding credentials. I have to update it every two years and in 2008 I said I am not going to wait until the last minute. Guess what my CE Units are due on the 30th of April and I just got started on the credits I need, procrastination thats me.
I have got to get my act together, LOL that will be the day. My mind is on auto pilot most of the time. You have heard the lights are on, but nobody's home. Thats me!!!!
Let's see what has been going on. I was working on Damo's room and then his Angel date (Feruary 12 came around) and now it is March 1st and his birthday is March 11 so I will probably not really be working in there that much until these days go by. He has been gone for 4 years and guess what, I still am waiting to wake up from this nightmare that has been my life for the last four years. Its not easy and I take it day by day and sometimes its hour by hour. I Miss Him Like Crazy and My Heart Still Breaks, But I Know He is Watching Over All Of Us!! We Love You Damo!!!!!
Brandy is doing ok. I was worried about her after Shadow passed away. I started taking her on walks. She gets one in the morning between 7 and 8 and then another in the afternoon between 2 and 3. I swear that girl has an alarm clock attached to her. About 7am she starts pacing the floor, then at 2 she starts pacing because now it is time to eat, and then between 2:30 and 3:00 she starts pacing again because now its time to eat.
Well lets see I have to catch up on quite a bit so let me get started. Kyra started school and is in the 2nd grade, I can't believe it. Kylie started Pre-K and then next year she will be in kindgarten.

The twins turned one on October 31, 2009. It was a great party and it is so had to believe that they are one already. They are great. They are walking all over the place and it is so neat to see their personalities as they grow.

Ellie turned two on December 18, 2009. Her party was on December 13, 2009. I can't believe she is two already. My babies are growing up. Her party was a lot of fun.

I put up a tree this year, I have not done that since Damo died. It was hard but it was a pretty white tree and most all of the ornaments that were on there were Damo's.

We celebrated Christmas at Mom and Bill's. It was a lot of fun. Mom and Bill got me an amazing camera for christmas. I love it. I am going to take some photographer class.

My cousin Jason that had leukemia passed away in January. I wish he could have been able to beat it, and I know his Mom, Sister, Wife and Three Precious Little Boys Will Miss Him. Keep them in your prayers. WE MISS YOU JASON AND I HOPE GOD CAN HANDLE JASON ND DAMO TOGETHER. ONE THING I KNOW IT IS PROBABLY NOT AS QUIET IN HEAVEN NOW.

My babygirl Tassia had a birthday on January 19. We got together at The Old Spaghetti factory to celebrate her birthday. I am very proud of Tassia, she has done such a great job of raising the girls, by herself . Love you Babygirl!!

And my other babygirl Erika is going to have a babyboy in July. Erika is a great Mom and Ellie is so sweet. She and Jerry are excited they will now have a girl and a boy. I can't wait.

Grandma's had five girls and now I will have a grandson. I feel sorry for him with all the girls.

Well I think I have finished by update. Hopefully I will not let it go this long.

I Love My Family, My Kids, My Grandkids, My Friends

Love to all Jacke

Brandy loves the babies.

Shadow watching the twins. This is one of my very favorite pics

My little Shadow Boy

Well I am hanging out at home. I do not have the girls today. Lets see since I wrote last time my litte Shadow dog has passed away. He is now with Damo up in heaven. I sure they are running around and having a great time. Shadow died at home which I am glad I didnot have to have him put down. I miss him running through the house and squeeging his toys. I miss his barking, but most of all his love, and his endless licks.


Since Shadow died I have been trying to keep Brandy busy, because she does miss him. They were together for 9 years. I have been taking her for walks which she loves. You cannot even say WALK or she runs to the table where her leash is at, so if I plan on taking her I have to spell Walk. Once she learns how to spell I am in trouble.


I miss Damo so bad. It is time to start into the holidays again which I refer to as pure hell. The pain does not go away you just learn to live with it. I miss him today as much as I did the day I lost him.


Mike has been as busy as ever at work. Today is his Friday off. So we are just hanging out at the house.


It has been so hot here. This week about 3 days were over 100, so I say bring on the cold weather. I love it to be cold, I do not like it hot.


Well that is it for the day. God bless everyone

My Babygirls Tash, Kayden and Dakota 9-4-2009

Cy 9-4-2009

Been a while since I posted to blog. I am in Orange right now and will be heading home to San Diego tonight at about 5:00. Came to visit my Mom and Bill as it has been a while since I have seen them.

Shadow is moving around a lot more since he has been on the antibiotic. He has been on it now for about 5 days. He has been a little more active then he had been. He hates having to take all the pills and will try not to swallow them, so it takes a bit to get them down. He is still wagging that helicopter tail of his and wanting to lick you like crazy. He still has a lot of love to give. Brandy has been a little more active with him the last couple of days.

Went to see Tash, Cy and the twins on Friday. My two little babygirls are growing up so fast, it is hard to believe that on Halloween they will be one already. I will be going with them, Tash and others sometime in October for their first trip to Disneyland. They may seem to young but believe me when I say they are not. The sounds, the sites and the characters will catch their attention. I had Damo out there before he turned two and he loved it and after that he and I were always out there. So I know the twins will go in October and then their Mom will have them out there all the time. We often laugh about the fact that when her and Damo were growing up that we were probably out there at the same times and just didn't know it. Disneyland is the Happiest Place on Earth, that I know. You walk in the front gate and it just hits you. I am real excitied to be out for the twins first time there. The twins are so darn cute and lovable. My babygirl Tassia makes a great mommy which I knew she would without a doubt.

We were on vacation from Aug. 10 to Aug 28th. We were in Chicago to see Paul, Laurie and the kids, Joe and Jerry and we also saw Mimi while we were there. We went to the Cubs game and then to Milwaukee to see the Brewers play my Padres. The Pads won and I still even got to see Trevor Hoffman so all was not lost. I got a Tony Gywnn foulball. It came up by us and Paul got it and gave it too me. I was excited. We them went to SC to see my Dad and all of my family on my Dad's side and my Mom's side. We had a great time. Family and friends have become so very important to me after the lost of Damo. It is not that they were not as important before he passed but it does make you see and understand how your life can change in just one instant of time. So it mays family seem so much much more important then ever before.

I miss Damo everyday. He is the first thing I think of in the morning, the last thing I think of at night, and thinking of him many hours of the day. It is a pain I have had to learn to live with and a pain that never stops. He was, is and will always be my babyboy.

Well That is it for the day, hopefully I will post more often now. I also am trying to redo Damo's web site on myangeldamo@zoomshare.com. I am resizing pictures and just taking my time with it. If you get a chance visit the site look around and then also go to the links site and look at some of his other sites that I have done

Love to all

Jackie

Picasa Web Albums - Jackie

Picasa Web Albums - Jackie

My Loves

My Girls

My girls came over today. Tassia, Heather, Dakota and Kayden. It was really good to see them. They were doing ok. Tash and Heather are as sweet and loving as always, and my grnaddaughters well, they are growing my leaps and bounds and are as beautiful as ever. Love them lots. We had a nice visit.

Not much else going on. I am still trying to get over this cold that is hanging on. Have to do another round of antibiotics.